Haemochromatosis - British Liver Trust
Bone marrow aspirate examination is a gold standard to assess bone marrow iron stores. The correlation between serum ferritin and bone. Ask questions, trust your nurse, and relax. I have spent all day researching causes of low ferritin levels and those searches have led me to. Haemoglobin and ferritin appeared the most suitable screening tests, although An overview of evidence for a causal relation between iron.
My concern is whether they are missing something and maybe I have something else going on.
Ferritin | South Tees Hospitals NHS Foundation Trust
Being worked up for heavy menstrual period for cause but nothing unusual. I am perimenopausal and bleeding slightly more but never really had any issues with my reproductive.
Always heavy periods but not convinced that is the culprit. The GI workup is - so what else could it be and how do I get it worked up to know for sure. Any ideas or suggestions? Seeing a hematologist but thinking I should see someone else different speciality any ideas on that as well. Best to you all n your own challenges with this iron dilemmia. I've been experiencing symptoms of anemia but can't seem to get my doc to take me seriously. He says my numbers aren't low enough for me to be symptomatic.
Fatigue, excess shedding of my hair, any basic exertion makes my heart race My FE is 29, and percentage of saturation is 8. But my Ferritin is 51 which is in the normal range. Does anyone have any suggestions? Do these numbers indicate iron deficiency? My menstrual cycle is very regular, but extremely heavy. Any advice would be appreciated. Wed, November 9, 7: Hi Buffy - my story is very similar to yours except my ferritin is 40 still in the normal range.Low Ferritin, Hair Loss and Hypothyroidism Explained
I'm in the process of eating more iron-rich foods along with vitamin C - I'm desperate to feel better. I'll even eat liver if it makes things better!
I am also going to ask my doctor about supplements. Thu, November 10, Mary, thanks for the info. I didn't know that about the ferritin level.
I also make a point to eat iron rich foods, cook on cast iron I read that trace minerals can be absorbedand I also juice kale and spinach and drink wheat grass daily.
I'll draw the line at liver though! I remember having to eat it as a child. Good luck to you.
Thu, November 10, 4: I Have IDA as well as most of you and have recently been refereed to a hemotalagist. My blood work is way out of whack Serum Iron was 2 Ferritin 2. They told me to change my supplement to Ferrus Gluconate and take it twice a day with vitamin c.
I was curious if anyone knew what I should expect at the hemotologist visit as they assess me for Iron infusions and how that process would work. Also they told me I may need my bone marrow tested has anyone had that done?
Fri, December 30, 6: My anemia adventure started back in August I was feeling really crappy and was having real bad back pain. Went to the emergency room and found out during a bunch of blood work that I was mildly anemic.
Followed up with my GP and after a barrage of more blood test was told it was chronic disease anemia. At this time my iron was normal everything out of wak was around my red blood counts and my protein was low.
Its been down hill since, because of getting no true cause answers and getting more frustrated and worse by the day started seeing a hematologist by this time I had paid another visit to the ER this time for low potassium and magnesium and hemo was getting lower. I didn't have the energy to do anything started missing a lot of work I was tested for bleeding from my gastro specialist and I found out my beta carotenes were low.
Kept getting worse started seeing the hema in November had an Iron infusion first week of December my ferritin serum jumped up to so now its high but my saturation is still low and my hema came up to almost normal Specialist retested my beta and now liver counts and my beta is down to 5 so my immunity is compromised right now. I was told 3 weeks from the infusion I would feel like a new woman. Still waiting for that new woman because she never showed up.
My husband and I are very frustrated and need answers but so far nothing on what is causing this. As far as my blood work its always been pretty normal accept for by type II diabetes which its the one thing that is under control now. My mom had mylodisplasia syndrome and I am concerned this is the onslot of it but they have yet to do a bone marrow test and I am not quite sure why not.
Never feel like I am asking the right questions. Wed, January 4, 9: I am a 65 year old women who has been in petty good health until some blood tests revealed I was borderline iron deficient.
After repeating the RBC a few months later, it was found I had a very low ferritin levelbut was not yet anemic. My doctor said this was a precursore to anemia and I should get it checked out with a hematologist. I am looking for causes--I know bleeding somewhere in the body could be a cause but I had a colonoscopy in the last 5 years along with a endoscophy which diagnosed GERD and take an acid inhibitor everyday.
It was after taking Omeprazle that my blood levels changed so I was wondering if anyone else had experience with a drug inhbiting acid might interfere with nutrient absorption.
Tue, January 17, I've been dealing with various levels of ID since I was 12 years old. I have been on ferrous gluconate for years to deal with it. In spring my iron level was at a four fo my doc put me on FerraMax, easier to absorb, when I went back 2 months later my levels dropped to 2.
She referred me to a heatologist and changed my oral iron Proferrin, supposedly the best oral iron there is.
I got into a special combination clinic held at the Women's Health Centre here, where I am now seeing a Hematologist and Gynocologist at the same time. The hematologist has put me on Venofer treatment once every two weeks, while the gyn is having me get every type of ultrasound available and has put me on cyclokapron during my period to try to control the bleeding.
I have had 4 iron infusions and although my iron and hemaglobin levels are up, my symptoms aren't getting any better. I'm still exhausted and freezing all the time, I keep getting sharp pain in the upper left abdomin, always nauseous, no appetite, headahces, ect.
SHouldn't my symptoms be alleviated somewhat by now? I was diagnosed as borderline hypothyroid about 5 months ago and have been taking synthroid ever since. I was also hospitalized 2 years ago with acute cholesystitis and had to have my gallbladder removed. I was 29, not over weight, low-fat diet and had been experiencing episodes since the age of 12 as well.
Should I be pushing for a different diagnosis? Something is obviously wrong. I have severe iron deficiency. Almost any activity at all causes my heart to race and I am short of breath all the time!!! I have terrible restless leg syndrome, I have a lot of trouble sleeping, constipation and I am tired and cold ALL the time!!!
You Are Not Alone | Get Your Iron Up | Iron Deficiency Anemia Information
I was told to take mg of iron twice a day but I am unable to take this. Everytime I take an iron supplement I feel horribly nauseous and usually vomit!!! I just cant take this anymore!!! I have never heard of an iron infusion, maybe I should ask my doctor about this. Additionally, ferritin can be elevated in chronic renal kidney insufficiencies, infections, chronic inflammation, some forms of leukemia and cancers.
Elevated SF can also be seen in patients as a response to medication or hormone replacement therapy or in chronic users of nicotine gums or alcohol. Serum ferritin can be highly elevated in conditions not categorized as iron overload: HFCS is a disorder that results in early onset cataracts; SF will be dramatically increased in these individuals. Phlebotomy is not warranted and could actually do harm if performed therapeutically to lower serum ferritin in a person with HFCS.
Tips to discuss with your healthcare provider: If iron supplements are recommended, take them with vitamin C-rich foods or beverages. If you have elevated body iron, lower your ferritin with these approaches: For others, iron chelation therapy, consuming calcium rich foods, drinking coffee and tea at mealtime, and limiting supplemental vitamin C at mealtime can help. Lifesaver tip from HealtheIron: Lower GGT and protect against oxidative stress by consuming foods rich in antioxidants.
Heritability of serum iron measures in the hemochromatosis and iron overload screening HEIRS family study. American Journal of Hematology.
Annals of Internal Medicine. Serum measures of iron status and HFE gene mutations in patients with hepatitis B virus infection. Low hemoglobin alone is an indicator of a problem, but let me caution you that you MUST also know your ferritin level before you start any type of iron supplementation.
Certain conditions and infections can cause your hemoglobin to drop, but your iron stores could in fact still be very high. Taking iron when you already have iron overload can be extremely dangerous and even fatal. I saw my gynecologist who, based on further testing and my history, confirmed that my anemia was due to heavy menstrual blood loss and a possible underlying bleeding disorder.
With all of this information, my hematologist ordered a series of IV Iron Infusions at an infusion lab at a local cancer center. I looked around and gave thanks that I was not there for chemotherapy and felt foolish that I had allowed this to happen.
We’d love to meet you.
I vowed to try to educate and inform my family, friends and anyone who would listen about the dangers of IDA. I decided to make it my priority and mission to find new ways to improve my diet and lifestyle to avoid another scare in the future, and hopefully help other women along the way.
That was when I made the stunning discovery that Iron Disorders Institute is headquartered in the same city where I live! Stranger still, the Executive Director Cheryl Garrison and I share a mutual friend who suggested that I contact Cheryl for iron information.
Our first meeting for morning coffee turned into lunch I was amazed at the information she shared with me and realized how very NOT alone I was! The statistics about IDA are staggering — and I immediately felt a calling to help her spread awareness about the untold dangers of the disorder.
Cheryl and I continued to meet on a regular basis and plans started to formulate. As a daughter, wife and mother of two busy boys, I know how Iron Deficiency Anemia can slowly creep up on you, before you even realize what's happening. Women, especially those of us who are moms, are so busy running around taking care of everyone and everything else in our lives that we all too often neglect ourselves.
It usually takes a health crisis to get our attention!